Comments on: PVNS on my Wrist http://cloudless.net/clouded/archives/2004/10/28/pvns-on-my-wrist/ Sunny Says... Wed, 07 Jan 2009 03:02:38 +0000 http://wordpress.org/?v=2.1 By: Michelle http://cloudless.net/clouded/archives/2004/10/28/pvns-on-my-wrist/#comment-4361 Michelle Fri, 31 Mar 2006 21:10:14 +0000 http://cloudless.net/clouded/archives/2004/10/28/pvns-on-my-wrist/#comment-4361 Hi- I was wondering if how your wrist is after surgery. I have PVNS in my knees and am wondering what the best treatment is. Please contact me if you would like to discuss. Michelle Hi-

I was wondering if how your wrist is after surgery. I have PVNS in my knees and am wondering what the best treatment is.

Please contact me if you would like to discuss.
Michelle

]]> By: sam http://cloudless.net/clouded/archives/2004/10/28/pvns-on-my-wrist/#comment-4365 sam Sun, 09 Apr 2006 02:16:39 +0000 http://cloudless.net/clouded/archives/2004/10/28/pvns-on-my-wrist/#comment-4365 i had/have PVNS in my left knee and finally had it removed thursday after having it for more than a year.. i still have a ittle though in the side of my knee which i am going to have to go back from treatment i had/have PVNS in my left knee and finally had it removed thursday after having it for more than a year.. i still have a ittle though in the side of my knee which i am going to have to go back from treatment

]]> By: Matt http://cloudless.net/clouded/archives/2004/10/28/pvns-on-my-wrist/#comment-4411 Matt Sat, 13 May 2006 19:52:07 +0000 http://cloudless.net/clouded/archives/2004/10/28/pvns-on-my-wrist/#comment-4411 Hello all, pvns is a bit of a nasty problem to have. I had my first surgery 2 years ago,(left knee) and have had 3 since(about every 6 months). The first one was a big deal, they had to remove alot of it, removed the synovium lining (synovectomy) and i had alot of swelling and scar tissue buildup. Last 2 surgeries werent bad, simple scopes, was out for couple days, after 2 weeks went back to work. Theres a couple things i have found that helps, some people have recommended glucosimine supplements that help produce cartilage and fluid in the joints. I did try that for awhile but i think it actually did more harm then good by speeding up the spreading and reoccurance. I stopped taking that about a year ago. It is something you have to get removed, the longer you wait the worse it will get and could cause bone damage. I waited to the point that it was real bad the first time, hence why it was such a hard recovery. Ive been to several specialist, one of the best Drs at Rush hospital in Chicago, and ive gotten the same response. Theres not much that can be done at this point since it is a rare condition, and there hasnt been that many resources spent on finding a cure yet. Im wearing a mueller knee strap now, you can buy them at walgreens and they help to keep the knee in the same position which helps with the discomfort. I get alot of popping, and discomfort from that knee and I have found that if i walk 3 times a week 2 miles each session, it helps. Hello all, pvns is a bit of a nasty problem to have. I had my first surgery 2 years ago,(left knee) and have had 3 since(about every 6 months).

The first one was a big deal, they had to remove alot of it, removed the synovium lining (synovectomy) and i had alot of swelling and scar tissue buildup. Last 2 surgeries werent bad, simple scopes, was out for couple days, after 2 weeks went back to work.

Theres a couple things i have found that helps, some people have recommended glucosimine supplements that help produce cartilage and fluid in the joints. I did try that for awhile but i think it actually did more harm then good by speeding up the spreading and reoccurance. I stopped taking that about a year ago.

It is something you have to get removed, the longer you wait the worse it will get and could cause bone damage. I waited to the point that it was real bad the first time, hence why it was such a hard recovery.

Ive been to several specialist, one of the best Drs at Rush hospital in Chicago, and ive gotten the same response. Theres not much that can be done at this point since it is a rare condition, and there hasnt been that many resources spent on finding a cure yet.

Im wearing a mueller knee strap now, you can buy them at walgreens and they help to keep the knee in the same position which helps with the discomfort. I get alot of popping, and discomfort from that knee and I have found that if i walk 3 times a week 2 miles each session, it helps.

]]> By: Trish http://cloudless.net/clouded/archives/2004/10/28/pvns-on-my-wrist/#comment-4666 Trish Sun, 02 Jul 2006 08:59:45 +0000 http://cloudless.net/clouded/archives/2004/10/28/pvns-on-my-wrist/#comment-4666 If you don't mind my leaving this msg, wanted to let you know there's a good online PVNS support group in Delphi forums. I had to have 3 surgeries for my L knee PVNS, first an arthroscopic synovectomy, then within about 6 months an open syn. due to a fast aggressive recurrence, and another year or so later a total knee replacement. That was about 3 yrs ago now, and so far all is going well. Of course with a TKR it's easier for them to (hopefully) get all of it out, but I know there's the possibility of another recurrence someday. Am enjoying my current condition, though! Hope things go well with all of you . . . If you don’t mind my leaving this msg, wanted to let you know there’s a good online PVNS support group in Delphi forums. I had to have 3 surgeries for my L knee PVNS, first an arthroscopic synovectomy, then within about 6 months an open syn. due to a fast aggressive recurrence, and another year or so later a total knee replacement. That was about 3 yrs ago now, and so far all is going well. Of course with a TKR it’s easier for them to (hopefully) get all of it out, but I know there’s the possibility of another recurrence someday. Am enjoying my current condition, though! Hope things go well with all of you . . .

]]> By: helen http://cloudless.net/clouded/archives/2004/10/28/pvns-on-my-wrist/#comment-13437 helen Sun, 25 Feb 2007 17:19:13 +0000 http://cloudless.net/clouded/archives/2004/10/28/pvns-on-my-wrist/#comment-13437 I just had open synovectomy in the last four wks on my left knee. Have had this problem for a year after a bad fall at work.Just want to know what happens next ?Pain and swelling has not gone away after the op!!Want to know if for the future all this will go back to normal . feb 07 I just had open synovectomy in the last four wks on my left knee. Have had this problem for a year after a bad fall at work.Just want to know what happens next ?Pain and swelling has not gone away after the op!!Want to know if for the future all this will go back to normal .
feb 07

]]> By: Kim http://cloudless.net/clouded/archives/2004/10/28/pvns-on-my-wrist/#comment-13453 Kim Tue, 12 Jun 2007 01:50:23 +0000 http://cloudless.net/clouded/archives/2004/10/28/pvns-on-my-wrist/#comment-13453 I have PVNS... in my left knee, recently diagnosed after two plus years of pain. I have started blogging about it at http://kimberleesblog.blogspot.com/ I am getting ready for surgery (incisions in the front and back of my knee) in mid July. I am optimistic about the surgery taking care of it...but I have not read many "success" stories about PVNS. Anyone have a success story? I have PVNS… in my left knee, recently diagnosed after two plus years of pain. I have started blogging about it at http://kimberleesblog.blogspot.com/

I am getting ready for surgery (incisions in the front and back of my knee) in mid July. I am optimistic about the surgery taking care of it…but I have not read many “success” stories about PVNS. Anyone have a success story?

]]> By: Lynn http://cloudless.net/clouded/archives/2004/10/28/pvns-on-my-wrist/#comment-13454 Lynn Thu, 21 Jun 2007 14:04:19 +0000 http://cloudless.net/clouded/archives/2004/10/28/pvns-on-my-wrist/#comment-13454 I was misdiagnosed with it and it turned out to just be a bad case of tendinitis. However, I had a friend some time back who had PVNS in her knee, and two surgeries later over the course of a year or two, and she was totally fine. We lost touch a few years back, but I need to look her up. I was told and still hear all kinds of things about PVNS, and have no clue what to make of it. They say it effects taller people (I am tall), but I've seen short and average heighted people with it. My friend was only 5' 7" I was misdiagnosed with it and it turned out to just be a bad case of tendinitis. However, I had a friend some time back who had PVNS in her knee, and two surgeries later over the course of a year or two, and she was totally fine. We lost touch a few years back, but I need to look her up. I was told and still hear all kinds of things about PVNS, and have no clue what to make of it. They say it effects taller people (I am tall), but I’ve seen short and average heighted people with it. My friend was only 5′ 7″

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